Mike and Kk are in the clinic right now for labs and exam. She will have a lot of tests this pm. Thank you all for the prayers. We will update you later. Thanks.

Tests coming

On Thursday we will finally get some peace of mind. Mikayla is scheduled to run a small gamete of tests to see what may or may not be at issue. The tests are focused in on her heart and blood pressure. From our brief discussions with her team that is the area that they want to check first. Her issues still are not major, but the fact that she has issues makes you worry. I think the tests will help our growing concern about her status and has allowed us enough time to prepare for any outcome.

A Little Bit Different

Last week Mikayla woke on Saturday dizzy and nauseated. At the request of the on call Hem/OC we took her to Kansas City for testing. They pulled a CBC and checked her vitals and wrapped it up by saying monitor her, its probably a virus. Today same thing. I called her NP. The NP confirmed with her BMT Dr. and it was agreed that we need to monitor her. Tonight she gets a nose bleed, not bad, but still it was out of the blue and had not happened since last summer. We call the on call BMT NP, guess what, monitor her. ?@#$#@? When do we quit monitoring and start finding out what the problem is? It could... be a virus. It could... be her heart. It could...., well hell it could be anything from something minor to major. At what point do they actually decide we do or don't have a problem. If you hear a knock in your engine what happens if you ignore it? Maybe it goes away or maybe your engine fails. Are we that different? Wouldn't rather know what is causing the knock, or would you rather take your chances and hope the engine does not fail. That is how I see it. Why wait and see if she has some kind of failure instead why don't we see what the "knock" is. It's probably... blah blah blah. Probably is not good enough and I have voiced that opinion and it fell on deaf ears. I have very very high regards to my BMT team especially my BMT Dr. I don't do anything unless it comes from him directly. If he says monitor I guess we monitor. I just don't like waiting to see what will or will not happen.

Mikayla

Well its been about a month since the last post and things are still on the same path. She is doing pretty good. Her skin is starting to blend and her hair is longer than most mens. She is engergetic and cherry.

Birthday Time!!!

Mikayla will be celebrating her 6th birthday on April 12, 2010. We will have a party on April 9, 2010 around 6pm to celebrate the event. Everyone is invited! Those of you whom have kept up with her progress but have not yet had the opportunity to meet her feel free to come by. The party theme will be kept secret but it will be fun and unique. Please email me at michaelbassett76@yahoo.com for time and location. Hope to see you there.

So much for it being the last post

The weeks since posting last are still bringing changes. Sometimes as parents major changes make us believe all is well and there is no need for updates. Yesterday Mikayla's bone marrow aspirate netted that she was still Leukemia free and that all her cells have converted to Malachi's. This week we had a dry run at an emergency with her and it was a major fail. Mikayla had against all odds managed to get Roto Virus A. The virus leads to excessive vomiting and diareha. We were told to see if they can pull blood locally and give I.V. fluids. With a few calls all seemed as if it would be ok. After ariving to the hospital we didn't get treatment for over 3 hours. Hygene was a huge issue as well. The nurses kept forgetting gloves and really didn't know how to do what Mikayla needed. We needed blood pulled before IV, but they insisted on doing it the other way around. This left a faulty picture of what was going on and if she was truely dehydrated. To make a long story short if it was a true emergency Mikayla would need to have service (proper service) in the span of an hour or she runs the risk of having fatal consiquences. We have since talked to the ER management and worked up a plan to have what we need in the time frame we need it.