Christmas 09

First we would like to apologize for having no update for a while. Between the weather and taking care of things , we got really behind. As far as her skin is concerned , it is looking pretty good. Her skin is healing very well. Thank you for all who prayed for her. As per dermatologists , it is still graft vs host (65%). Bone marrow attending believe it is Stevens Johnsons syndrome. Still not 100% sure what it was. What they say is very hard to distinguish because both are identical under microscope. But for precaution, they will prevent use of drugs who are listed and maybe similar to what can cause the reaction that she had. Mikayla's counts are still looking good. Although they are going down , still within safe level. I was told that due to slowing down to almost stopping steroids, numbers will go down. They will continue to monitor. It makes it hard for us parents when numbers are going down and her primary doc is on vacation. I know we are supposed to trust other doctors but still hard when you see different ones. And each time you get new set of rounding docs , they have to learn Mikayla's case from the beginning. We apply vaseline all over her body at least 2x day to prevent skin from drying and allow flakes to pill easily. So far , her skin looks great.
Christmas was busy. We want to thank all our family and friends, everyone who sent prayers, cards and gifts to us. Thank you. Our friends who came visit and tried to visit , thank you. She complained of abdominal cramps/pain in the last 3-4 days. Threw up as soon as she opened Santa's gift on Christmas day. Tonight the nurse thought that it could be gas from broccoli she consumed in the last 3-4 days. Hmmmmm , maybe just full of air....hehehe. But still overall , we are very thankful for all the blessing we received this Christmas. Ada, Don (our friends driving back to Arkansas and flying back to Florida tomorrow) THANK YOU and be careful . We are so blessed to have all these people who hope with us , fight with us , and Believe with us...Merry Christmas and Thank you so much.