We had a busy Sunday. Tooth fairy came and left her $10. Told her, because we are in KC, the tooth fairy considered cost of living and taxes difference.LOL. We had few friends and family came to see us. It was a good visit for everyone. Of course Mikayla was busy between the visit and the playroom. She has good sister to play with and a good brother to watch her.
Her hemoglobin was 7.2 (7 or below needs transfusion) and was told that possibly by Monday morning they will transfuse. Nothing stops her from playing. We all can expect any 5 yo will do the same thing. She was tired but did not go to bed till 10:30.
Monday: She woke up around 9 am. Had tater tots, bacon, peanut butter toast and orange juice for breakfast. No transfusion because Hgb stayed 7.2. She has been maintained at 8-7.2 for last 4 days. We were told that bone marrow aspiration will be probably Wednesday. She had a repeat EKG Sunday and docs today said , a little prolonged Q wave which they are not alarmed. They want to monitor that due to some medication can make it worse but she is not taking any at this time. She has a cardiac consult tom. Of course she played all day. We left to go to store this pm and was upset not just because she cannot go but bec. kuya (big brother) and sissy are leaving her. They promised her a present so she was somewhat ok. Mariz and Mon (my sister and brother in law ) stayed with her and Malachi while we were gone. I can't wait for the day that she can go to a store again. She always wants to ride in the cart and try clothes. When she wants somethings and I explain why she can't have them, she will always say, "Oh right mom , we're only here to get what we need and not what we want" . She even tells her brother and sister that when they ask for something we don't need. One of this days, she will go home and go to the store. I know she will...
Then of course it was time for Daddy, (kuya) Damien and (Ate) Darian to go home. She hates that. When they left, she was upset. Her mood changed. She was crying. She went to bed early. It is so hard to be away from each other. But we don't have a choice right now.
My heart breaks when I am away from any of them. Mike does an excellent job playing both roles and I am thankful for that. It is just...when it comes to taking care of certain things, a mom has that TOUCH....(no offense to dads )
Again , we would like to thank you for praying non stop for Mikayla and our family. All of you who are helping us in so many ways. We would like to thank you for everything. Individuals, couples, families, churches, organizations, businesses, etc , THANK YOU so much. If we missed or forgot to thank you , we apologize sincerely. Thank you and God Bless us all.