Kenna

Kenna Bradley 1996 - 2009 Lawson, Mo.
Lawson, Mo. — Services for Kenna Lee Bradley, 13, Lawson, Mo., will be at 11 a.m. Tuesday at Mellon’s Community Hall in Lawson, Mo. Burial will be in Lawson Cemetery.
Kenna died Tuesday, Dec. 15, 2009, in Kansas City, Mo., after a yearlong battle with AML leukemia.
She was born Feb. 6, 1996, in Kansas City, Kan., the daughter of Kenneth Francis and Rhonda Bradley. She attended Tonganoxie Elementary School and Lawson Middle School. She played softball and was a pitcher.
Survivors include her father and stepmother, Becky Bradley, both of Cleveland, Mo.; her mother and stepfather, Coe Bradley, both of Lawson; grandparents Kenny Bradley Sr., Tonganoxie, and Jackie and Joe Ruble, Ocoee, Fla.; great-grandparents, Henritta Bradley, Kansas City, Kan., and Delbert and Judy Bradley, Lawrence; a stepbrother, Collin Bradley, Cleveland, Mo.; and two half-sisters, Brooklyn Bradley, Cleveland, Mo., and Sammie McDaniels, Tonganoxie.
The family will meet friends from 2 p.m. to 8 p.m. Monday at Mellon’s Community Hall.
The family suggests memorials to the Leukemia Society.
Polley Funeral Home in Lawson, Mo., is in charge of arrangements.

May God hold you close, Kenna you will be missed.

Disconnected from IVs

Docs were here. Discontinuing TPN and Lipids (supplement nutrition via IV) today. Stopping steroids. IV fluid stopping unless she is not meeting the 48 oz/24 hr requirement. All meds are switched to oral (trial basis). Mikayla is unhooked , watching movie in the bathroom while waiting for housekeeping to clean the room. Thank you God ,thank you family , thank you friends.......thank you for answered prayers...Amen!!!!!!

Woke her up at 10 am so she can take her medicine. Again ,she threw up yellow bile and asked nurse for meds. Took her meds orally and had a going in her IV. She wanted to go back to bed for now and get up when food gets here.
Waiting for food and rounding doctors/team to get here and tell me what is going on and the plan for this week. Thank you for all the prayers and support.

Happy about her Dora links

It was mess trying to download Dora Links since Christmas. She was not very happy about the trouble. Finally today Mike figured out and it worked. Mike said , she was very excited and really enjoyed playing. She was unhooked from her IV from 12 nn to 8 pm. IV pain med was disconnected and just as needed, orally. She was able to drink enough without hooking her back to IV fluids. TPN and Lipids will continue until 12 nn. They will give her more oral meds tomorrow and continue to weaning her from her IVs . Had a great day. Prayed for sweet dreams , continuous healing, thanked Him for lots and lots of blessings.......

Christmas 09

First we would like to apologize for having no update for a while. Between the weather and taking care of things , we got really behind. As far as her skin is concerned , it is looking pretty good. Her skin is healing very well. Thank you for all who prayed for her. As per dermatologists , it is still graft vs host (65%). Bone marrow attending believe it is Stevens Johnsons syndrome. Still not 100% sure what it was. What they say is very hard to distinguish because both are identical under microscope. But for precaution, they will prevent use of drugs who are listed and maybe similar to what can cause the reaction that she had. Mikayla's counts are still looking good. Although they are going down , still within safe level. I was told that due to slowing down to almost stopping steroids, numbers will go down. They will continue to monitor. It makes it hard for us parents when numbers are going down and her primary doc is on vacation. I know we are supposed to trust other doctors but still hard when you see different ones. And each time you get new set of rounding docs , they have to learn Mikayla's case from the beginning. We apply vaseline all over her body at least 2x day to prevent skin from drying and allow flakes to pill easily. So far , her skin looks great.
Christmas was busy. We want to thank all our family and friends, everyone who sent prayers, cards and gifts to us. Thank you. Our friends who came visit and tried to visit , thank you. She complained of abdominal cramps/pain in the last 3-4 days. Threw up as soon as she opened Santa's gift on Christmas day. Tonight the nurse thought that it could be gas from broccoli she consumed in the last 3-4 days. Hmmmmm , maybe just full of air....hehehe. But still overall , we are very thankful for all the blessing we received this Christmas. Ada, Don (our friends driving back to Arkansas and flying back to Florida tomorrow) THANK YOU and be careful . We are so blessed to have all these people who hope with us , fight with us , and Believe with us...Merry Christmas and Thank you so much.

Awesome morning

Last night, she burst out crying and when I asked her what's the matter, she said "I don't know", so asked her if she is mad, upset about everything and she said"yes" then she reached for a hug and held her all night. I told her, "Baby , it's ok to get mad , upset and cry." And u can yell and cry and mama will be here to hold you. About 2 am my legs are getting numb so I put her back to bed. Then she woke up 6 am wanting food. Cooked rice ans spam (again) ordered chicken (7am) and bacon and ate. This am she sat on the recliner while playing with computer. She also decided she will walk in the room to exercise her legs. Then wanted to sit by the window to paint. After painting , she said she will go back to bed and take a nap. Had 2 packs of swiss rolls, milk and now still napping. Thank you God for this day................

Long week.......

Tues was debridement and dressing change. She was covered wrapped except face , hands and buttocks. Was in a lot of pain but at least she had anesthesia thru her IV. There was a lot of screaming because of pain/discomfort. They increased pain med. Skin is healing according to the docs.
Wednesday, debridement including face. She was raw on the face , parts of her arms , buttocks and legs. Was told trunk looking really good.
Thurs, back to burn unit for treatment. Got pushed to later slot. No food for 15 hours and no liquid for 7 hrs. Long wait. THis time only arms , top of chest and legs are wrapped. Had active bleeding on her bottom. Skin looked like baby skin specially abdomen area and shoulders. Face still very painful.
Friday, at burn unit for treatment. Instead of 1 pm appointment, was told can do her a
t 11 am. Was rushed to get down but things were not ready. Organization and planning was poor. KK was fine going down but was in so much pain after procedure. Goal was to keep dressing for week end and no dressing change til Monday. PA came to rm later this day and told me that there was diasgreement between depts. In this hopsital what I gathered based on my observation, Burn Unit and Derma Dept don't like each other. Therefore, I was told that Burn U. will do what they want and they don't care what Derma. recommendation as to what maintenance cream to apply. That will put me in between. Paged Dr. Myers , her primary attending and he said , whatever will work for KK is what we are going to use. Still yet to be battled on Mon. We will see!!! Healed areas are looking great. Face and bottom/legs still raw. Still has a lot of pain but she is taking baby steps. So proud of her..........Thank you all for your prayers and support. God Bless us all.